Something that I knew I wanted to incorporate into my blog/site was downloadable resources to help people explain their condition to others or to try and make appointments feel easier and so I thought I’d post a the first one that I created – I initially printed this to give to the District Nursing team in my area so that I didn’t have to explain myself repeatedly. They’re all absolute angels but it gets difficult when you don’t know who is coming and I get quite upset when I have to explain my situation repeatedly and so this seemed like a perfect alternative! It is stuck at the front of my folder and on my online notes for the team so that they can see a little about what I have to deal with daily, and know what Fowler’s actually is. And it’s been perfect – pretty much everyone that has been out to me over the last 18 months has read the information and, not only do I have catheter changes with no awkward questions, but they’ve also learned something more about a condition that is rarely heard of!

Hopefully you’ll be able to see the document and download it from here but if my previous post is anything to go by (here) I may not have fully grasped how technology works – so let me know if there are any issues! If you have Fowler’s Syndrome or are a medical professional, or if you know someone who is or just want to know more, please, please, please share this PDF! I’m trying to spread the word about Fowler’s as much as possible because awareness can’t harm us, right?! So feel free to save it or download it or print it – use it in any way that helps!

All my love,

Anna x